Apparently planning your own palliative care in advance is highly unusual. This has been my project for the last few weeks. I don´t think it is fatalistic, I think it is just pragmatic and I´ve found some degree of comfort from it.
I seem to be moving beyond ‘standard’ treatment. My medical team has no guidance on whether I should do another round of chemotherapy following my recent surgery. Really struggling with how to make this decision.
Several months ago, mid treatment, I came up with a list of non cancer projects to distract me. One of them was to record a song for my kids. Well, months later, I can finally tick that particular project off the list.
Got my first surveillance scan results and they were good. Unfortunately many people around the world - some friends - have not been getting such good results. I also know I am just at the beginning of the long and dangerous road of recurrence. Cancer just sucks.
I’ve been very lucky on financial front with respect to my cancer journey, but the monetary cost of cancer is still pretty high. It’s a question I often get so I thought I’d share some of the details here.
After 10 months of cancer treatment a good PET scan has meant an end, for now. Now my doctors are telling me to just “do what I normally do” i.e. get back to normal life…and come back to see them for another scan in 6 months. Which such a big cloud hanging over you, how do you just “get back to normal”.
There are so many people to thank. Too many in fact. However just before I complete my last major surgery in my 1st line treatment journey I thought it was a good time to pause and thank a few key people.
Completing my legacy video library was one of my 'non-cancer' projects so I felt the need to provide an update on my progress. However I've since been asked a couple of times for advice on how to set up these collections by other potentially terminal patients with kids, so I figured I'd turn this into more of a guide for others.