I spent years preparing myself to die but as the magical 5 year survival marker approaches, I need to completely reprogram myself.
The results are in…I have officially been cancer free now for 2 whole years, and I’m feeling very, very grateful.
I've always supported assisted dying for the terminally ill in principal. These days is has become very personal. NSW is now way behind the rest of Australia and NZ on this issue.
How do you get the optimism / pragmatism balance right in the context of Stage 4 cancer and a full-time job ?
Apologies to everyone that has emailed or otherwise been in touch to ask for an update on my last scan results.
I’ve written before about how, as part of my dual tracking cancer strategy, I’ve been recording a series of videos for my kids. I’ve also been writing something I’ve called ‘A long letter from Dad’. Like the videos, the writing is only meant for them, but I just finished one section that I would like to share to get some feedback / other ideas on.
Wow, it’s been two years since my diagnosis. I’m still here and very, very grateful for it. However I haven’t yet learned the art of not just surviving, but thriving.
Not a totally clear PET scan result, but much better than what I was mentally preparing myself for.
I did my 6 monthly PET scan yesterday. I get the results today. To say I'm nervous is an understatement.
What is it they say about the truth setting you free? This week I saw a doctor who told me nothing new, but who also managed to just tell it to me like it is. And sometimes the truth hurts.
Apparently planning your own palliative care in advance is highly unusual. This has been my project for the last few weeks. I don´t think it is fatalistic, I think it is just pragmatic and I´ve found some degree of comfort from it.
My recent cancer recurrance has made me realise that I need to learn more about immunotherapy sooner than I thought I´d need to. Here´s my own 101 summary.
Not sure why but folks suddenly seem interested in what happened to my non-cancer projects. Two emails just today about it ??? Anyway, here is an update.
I seem to be moving beyond ‘standard’ treatment. My medical team has no guidance on whether I should do another round of chemotherapy following my recent surgery. Really struggling with how to make this decision.
A quick run down on the surgery. All went ok, but there are always complications. WARNING: medical images.
Booked for liver surgery on Feb 15th. They think it might also be in the prostate, so more tests to follow.
So…crap…cancer is back. Not sure yet what the plan is, but it's back. Hoping that surgery is an option. Should know more in the next few days.
Balancing personal and professional ambition with a NED (no evidence of disease) status is proving to be tougher than I expected, and it has affected a larger part of my life than I expected.
I spend a lot of time explaining my current health status, so I thought I’d devote a bit of time explaining it as crisply as possible here.
Several months ago, mid treatment, I came up with a list of non cancer projects to distract me. One of them was to record a song for my kids. Well, months later, I can finally tick that particular project off the list.
Nothing much to report, but people are starting to write to me checking on my health status because I’ve been so quiet. Felt like a little update was required.
Got my first surveillance scan results and they were good. Unfortunately many people around the world - some friends - have not been getting such good results. I also know I am just at the beginning of the long and dangerous road of recurrence. Cancer just sucks.
Well the time has come to, as they say, get on with things. I’m gearing up to start back at work on July 1st, not without some trepidation.
I’ve been very lucky on financial front with respect to my cancer journey, but the monetary cost of cancer is still pretty high. It’s a question I often get so I thought I’d share some of the details here.
After 10 months of cancer treatment a good PET scan has meant an end, for now. Now my doctors are telling me to just “do what I normally do” i.e. get back to normal life…and come back to see them for another scan in 6 months. Which such a big cloud hanging over you, how do you just “get back to normal”.
There are so many people to thank. Too many in fact. However just before I complete my last major surgery in my 1st line treatment journey I thought it was a good time to pause and thank a few key people.
I am digesting the results of my first post first line treatment PET / CT scan, and in the process trying to understand what 'surviving' stage 4 cancer really means.